08 Mar 2010
- Last Updated on Sunday, 30 September 2012 22:41
- Written by Administrator
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Jelibean is a group of individuals committed to promoting the awareness, understanding and help for those experiencing ASD and the trials and tribulations of parents and carers whilst living with ASD adults and children, many attempting to understand and, live with and attain services for their loved ones.
Two of the original founders remain with the group Debi Evans and Gary Sumnall.
Debi Evans is a State Registered nurse with a PG Cert Autism. She herself is diagnosed (with ADHD but is currently under assessment for ASC as she feels she has never been fully diagnosed) on the Autism Spectrum as are all of her five children. She lives, breathes and understands what life is like for those on the spectrum and how it affects everyday life. After five years of toil, Debi’s vision is starting to take shape, and Jelibean passed through an objective of becoming a registered charity but felt that shifting goals have changed the direction of the organisation
Gary is an ex-health professional with a wide medical technology experience, has lived with his severely autistic son for the last twelve years and has two children who are on the autistic spectrum and are riding the diagnostic pathway. With a long interest in the autistic condition has researched the myriad of “causes” and helped Debi formalise her understanding, presentation and organise Debi’s thoughts which often have a habit of straying and need gently guiding sometimes!
Jelibean have been around for about five years in different guises, first as a small research platform where we gathered experience and understanding of the service requirements for local families. The aim of Jelibean has alwas been to help children and families in the South West understand own needs, communicate those needs, get the diagnosis and financial support they require. We still give help via text, email and phone as well as in person to a wide range of local individuals and often receive referrals from local agencies.
Our short-lived charity courageously attempted to provide these services but realisation of the enormity of the task meant that a shift in strategy is required. We are now spending more time on a higher profile promotion on awareness of ASD using modern communication networks to promote this.