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Going down the HEALTH ROUTE (Children)_ - first steps

 

PART 1

THE MEDICAL ROUTE. ( PLEASE SEE PART 2 – THE EDUCATIONAL ROUTE)

ROUTE MAP or maybe ROUTE MARCH!

For those of you who are not good with directions (I am one of them) and those of you who are familiar with Spaghetti Junction – you will be grimacing now for sure! Get your strongest shoes on, grab a flask of tea (maybe something stronger!) and let’s get started. Please don’t expect miracles or quick fix solutions, the wheels turn VERY slowly.  This article is intended for use with children. For those of you who are adults or adolescents who are in search of a diagnosis, please read the article entitled 'ADULT NEEDING DIAGNOSIS, HELP!

The minute a parent ‘flags’ up an issue with their child’s behaviour, eyebrows appear to become raised and fingers of blame are pointed. It is sadly a sign of the times. Parents by enlarge get blamed for most things, including the behaviour of their little sweetie. It’s a tough decision for many to seek help, but for those that do here are a few hints to prepare you. Please note for international readers  this information is applicable to the UK.

Generally parents head for their family doctor or if the child is school age it could be the teacher heading for the parents!

But given the choice which way is the best?

 

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Going down the EDUCATION ROUTE (children) - first steps.

PART 2

THE EDUCATION ROUTE. (PLEASE SEE PART 1 – THE HEALTH ROUTE)

Please note this article is UK specific. But we would be delighted to hear from anyone outside the UK with their stories and their routes of diagnosis and support! Do let us know what is happening in your part of the world. For adults and adolescents please read article on ‘ADULT/ADOLESCENT NEEDING DIAGNOSIS – HELP’ (Part 3)

So let’s get down to it! You are reading how to go down the educational route – for a number of reasons I suspect maybe:

  1. Which route to take, make up your mind time?
  2. Maybe you have taken this route and have got a bit lost! – help!
  3. It’s out of your hands, Education have approached YOU!
  4. You are not aware of any other route.

For those of you think this could be a short cut? Wrong it isn’t! This route is filled with just as many pit holes as the Health route. But hey you may be more comfortable with one route more than the other. It really is six of one and half a dozen of the other, there is no difference in difficultly! Sorry to burst your bubble.

 

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Walking the Tightrope of Life

For many of us on the Autism Spectrum, life is as perilous as walking a tightrope 1000 feet up in the air without a safety net! How much more scary can it be! And to top it all jelibeans are really scaredy cats but many don’t admit it whilst others are risk takers and leave you gasping!  To totter along this tightrope requires skill, understanding and someone to keep an eye on us ensuring we don’t wobble and fall off! This is where understanding and knowledge of what it is like to be a jelibean comes in very handy.

Prepare yourself, we are going to walk the tightrope but using safety lines to ensure we DON’T drop into doom! Let’s get some safety equipment ready.

 

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I'm an ADULT! What diagnosis route for me?

Now this is a little more tricky folks. Whilst it’s still a job to get our children diagnosed, it is far less likely we will have success locally in obtaining a diagnosis.

For those in Cambridge UK you may be more fortuitous as that is where the Autism Research Centre is based! It is Jelibeans experience that any services that do exist for adults are rare, those that do exist have to be funded personally. It is like looking for a needle in a haystack.

But for the rest of us adults, it’s far more complex. You see half the battle is finding a specialist. But even when you find one, what are they specialists in? Consultants by enlarge appear to specialise in one particular part of the spectrum, there would appear no one currently expert in ALL areas of the Autism Spectrum. So a diagnosis will depend on who you see. Sadly it is an area we have not fully understood yet so many of us end up with a diagnosis but not particularly accurate!

 

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